Skiing

For Toto, Liberate Life means pushing boundaries

 

 

 



Meet Toto
Age: 26
Challenge: Skiing

Toto

Hi, my name is Toto

Haemophilia does not rule me. It’s a prominent feature in my life, but more often than not, it is secondary in the decisions I make. In fact, my decision-making relating to Haemophilia is a self-conscious process, such is my desire to lead life fully. I am only really reminded of it when I treat myself, three times a week, or if I have a bleed.

Developing this state of mind hasn’t been easy – I have Severe Haemophilia A, a history of Inhibitor, and a severe needle phobia – but has been driven by a can-do attitude instilled by my parents.

I truly believe my participation in multiple sports growing up has provided me with total self-sufficiency and confidence in managing life as a Haemophiliac. My body has limitations, but actively pushing the boundaries of sensible parameters (in conjunction with prophylactic treatment) has given me a full understanding of what those limitations are. It is because of this awareness that I recently participated in a very successful family skiing trip – an off-limits activity growing up.

As well as an extremely positive mentality inherited from my parents, I have a phenomenal support network with a platform to call upon with any concerns I have. Thanks to this network, I refuse to accept the status quo, write my own rules, take control, and live an extremely fun and active life.

Liberate Life embodies my core philosophy as a Haemophiliac, striking me as an almost personalised manual. I resonate strongly with the way in which it encourages people to push boundaries. Your boundaries will be different to mine, and we can all only go so far – but you won’t know, until you find out.

Click here to read more about how it is to live with haemophilia at different stages in life.

NP-10230
Date of preparation: March 2020

For Toto, Liberate Life means pushing boundaries

 

 

 



Meet Toto
Age: 26
Challenge: Skiing

Toto

Hi, my name is Toto

Haemophilia does not rule me. It’s a prominent feature in my life, but more often than not, it is secondary in the decisions I make. In fact, my decision-making relating to Haemophilia is a self-conscious process, such is my desire to lead life fully. I am only really reminded of it when I treat myself, three times a week, or if I have a bleed.

Developing this state of mind hasn’t been easy – I have Severe Haemophilia A, a history of Inhibitor, and a severe needle phobia – but has been driven by a can-do attitude instilled by my parents.

I truly believe my participation in multiple sports growing up has provided me with total self-sufficiency and confidence in managing life as a Haemophiliac. My body has limitations, but actively pushing the boundaries of sensible parameters (in conjunction with prophylactic treatment) has given me a full understanding of what those limitations are. It is because of this awareness that I recently participated in a very successful family skiing trip – an off-limits activity growing up.

As well as an extremely positive mentality inherited from my parents, I have a phenomenal support network with a platform to call upon with any concerns I have. Thanks to this network, I refuse to accept the status quo, write my own rules, take control, and live an extremely fun and active life.

Liberate Life embodies my core philosophy as a Haemophiliac, striking me as an almost personalised manual. I resonate strongly with the way in which it encourages people to push boundaries. Your boundaries will be different to mine, and we can all only go so far – but you won’t know, until you find out.

Click here to read more about how it is to live with haemophilia at different stages in life.

NP-10230
Date of preparation: March 2020